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QINGDAO TODAY
在线翻译:
szdaily -> Kaleidoscope -> 
UK baby born with backward legs
    2018-11-29  08:53    Shenzhen Daily

A BABY is one of just five people in the U.K. to suffer from a condition that caused him to be born with his legs backward and no buttocks.

Tracy Fletcher gave birth to Baron last month. He has caudal regression syndrome (CDS), which has also left him with clubbed feet and no control over his lower body.

Ms. Fletcher, 39, from Cheltenham, was advised to abort her pregnancy after the rare condition was picked up on a 20-week scan.

Despite being warned Baron would never walk, as well as suffer severe kidney, bowel and bladder problems, Ms. Fletcher continued with the pregnancy.

“We’ve accepted that if he’s disabled we’ll help as much we can. We don’t want him brought up any differently to any other baby,” Ms. Fletcher said.

Ms. Fletcher and her partner Edward, whose last name is unknown, first discovered something was wrong during a routine scan.

The care assistant said, “After the 20-week scan we immediately started wondering what quality of life he would have and if he’d have a chance of life at all.

“The doctor said he’d be severely handicapped, would never walk and would have kidney problems, bladder and bowel problems.

“But in the end, we decided to continue and to bring our child into the world.”

The youngster was delivered by two surgeons four weeks early. “After I came round they asked if I wanted to see him,” Ms. Fletcher said.

“As they lifted the screen up, the full reality hit home of what we had to face. He looked a lot worse than we thought, his legs were almost parallel with his shoulders.

“It was a very difficult moment and the first time I held him it was quite scary. A nurse said that in all of her 25 years she’d never come across a baby with the condition.”

The youngster was immediately put into an induced coma after his lungs filled with fluid and was only able to go home three weeks later.

“While he was in intensive care I was with him every single day and he just looked so alone and helpless,” Ms. Fletcher said.

Although Baron is now home from his stint in the hospital, the family still faces challenges every day.

“We can’t dress him properly because of the position of his legs and he can’t kick them,” Ms. Fletcher said.

“He has no feeling in his legs or across the lower part of his body but has recently started to move in some areas.

“He’s making so much progress each and every day but we’re unsure what quality of life he’ll have. In spite of everything he’s happy all the time.”

Writing on their GoFundMe page, Ms. Fletcher claims Baron will require surgery on his hips, legs and spine in the future. She is fundraising for a special car seat.

His parents are determined to give Baron the best life they can and insist he will be treated no differently than any other child.

“He’ll definitely be in a wheelchair. We’ve accepted that if he’s disabled we’ll help as much we can,” Ms. Fletcher said.

“We want to give him the best possible life, he’s loved by everyone. He’s got a lovely, heartwarming smile.

“Despite everything he’s been through and what he has to face on a daily basis, he’s turning into the most wonderful little boy.”

(SD-Agencies)

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