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在线翻译:
szdaily -> Shenzhen -> 
MRKH syndrome patients: unspeakable pains
    2021-10-13  08:53    Shenzhen Daily

IT is much easier for one with a common disease to get comfort and taken care of by others. But for many Mayer-Rokitansky-Küster-Hauser (MRKH) syndrome patients, their condition is unmentionable.

People with MRKH syndrome look no different than regular people. They are real women in terms of their chromosomes and normal ovarian functions, but with the absence of uterus and vagina, they still can’t live a normal life like other females.

A woman under the alias Xiaolin told Southern Metropolis Daily that she was diagnosed with MRKH syndrome in high school. She said that she couldn’t accept the fact after learning about her condition.

“After I got the examination results, for two or three years, I felt like my life would be over,” Xiaolin was quoted as saying. “People nowadays are very realistic – some people can accept not having children, but they can’t accept not having sex.”

Xiaolin later sought treatment at the Southern University of Science and Technology Hospital (SUSTech Hospital) and underwent a surgery performed by Pan Hongxin, deputy head of the hospital’s gynecology department.

According to Pan, MRKH syndrome occurs in about one per 5,000 females. Most patients can have normal sex lives as long as the syndrome is detected early and treated by surgery.

Many patients with abnormal reproductive development are found to be abnormal only when they do not menstruate in adolescence. Pan said these patients often delay getting diagnosed and treated because they are ashamed to speak out and lack doctors’ professional guidance and treatment.

“MRKH syndrome is not horrible. The key is to receive accurate diagnosis, comprehensive evaluation and select appropriate treatment options,” Pan said.

In addition, Pan said that diagnosis is the first step towards treatment. Some patients have relatively good physical condition and do not need surgery, while some would choose surgical treatments. Doctors suggest patients consider surgery after the age of 18. Aside from surgery, psychological issues cannot be ignored as well.

“Empathy alone is not enough. We need a more professional way to achieve good results,” said Pan, noting that psychotherapy is a treatment with technical requirements. In foreign countries, professional psychologists would participate in the diagnosis and treatment process, and patient mutual aid organizations also play a great role.  

(Zhang Yu)

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